Well, it has been one week since the spica cast was removed. Maddy is still not using her left leg. She has figured out how to crawl. The way she does it reminds me of a frog because her left leg is bent, and she uses the right to hop/scoot around. Maddy's left leg is also still swollen a little. So I am going to call the doctor tomorrow with my concerns. It is my opinion that she needs physical therapy. The doctor had originally said that they typically do not prescribe PT for children because they play so hard that they get PT through play. Maddy is playing, but absolutely not using that left leg.
Christmas was great this year. Everyone received what they wanted from Santa.
I will update when I have more news. Hopefully, tomorrow.
Thursday, December 27, 2007
Saturday, December 22, 2007
Nightime Cast
This is the cast that Maddy wears now at night. I forgot to take the picture when she went to bed so I had to take it after she fell asleep.
Thursday, December 20, 2007
The Hip Spica Cast Was Taken Off Yesterday
Kevin and I took Maddy for a CT Scan and a doctor visit yesterday. I was planning to speak to Dr. Rosenfeld about possibly taking the cast off early. It would be about 20 days early. Maddy appetite was lessening and she was beginning to spit up because she was running out of room in the cast. Her right foot has also stiffened up considerably.
Dr. Rosenfeld came in the room and told us that he had already looked at the CT Scan and it looked great. Then he said the magic words "Let's take the cast off"! So I received my Christmas wish yesterday. I wanted Maddy out of the cast before Christmas (of course, if it was safe to do so). I saw the CT Scan and there was a huge difference from the last scan, it looked so good.
Taking the cast off was very traumatic for all of us. Because her femur went into the hip socket so easily in the surgery, and Dr. Rosenfeld wanted it to stay in socket, the cast was very tight around the hip area and very thick to protect it from bumps. So it took alot to get it off. Once the cast was off, we were able to clean Maddy up with wipes,which did not do a very good job. Basically just her left leg had a lot of dead skin. That was kinda gross to look at.
It was so nice to be able to hold Maddy without that heavy cast on. They did make her another cast to wear at night. This cast is only on her legs. I will take a picture of her in it tonight and post it hopefully tomorrow.
Maddy is very sore in the left hip area. That area of her body has not moved for about 70 days. Right now she is not able to crawl at all. I keep moving her from sitting to laying down, jst trying to slowly loosen her up. But everytime we move her it hurts her. I really hope it gets better soon.
That's all for now.
Dr. Rosenfeld came in the room and told us that he had already looked at the CT Scan and it looked great. Then he said the magic words "Let's take the cast off"! So I received my Christmas wish yesterday. I wanted Maddy out of the cast before Christmas (of course, if it was safe to do so). I saw the CT Scan and there was a huge difference from the last scan, it looked so good.
Taking the cast off was very traumatic for all of us. Because her femur went into the hip socket so easily in the surgery, and Dr. Rosenfeld wanted it to stay in socket, the cast was very tight around the hip area and very thick to protect it from bumps. So it took alot to get it off. Once the cast was off, we were able to clean Maddy up with wipes,which did not do a very good job. Basically just her left leg had a lot of dead skin. That was kinda gross to look at.
It was so nice to be able to hold Maddy without that heavy cast on. They did make her another cast to wear at night. This cast is only on her legs. I will take a picture of her in it tonight and post it hopefully tomorrow.
Maddy is very sore in the left hip area. That area of her body has not moved for about 70 days. Right now she is not able to crawl at all. I keep moving her from sitting to laying down, jst trying to slowly loosen her up. But everytime we move her it hurts her. I really hope it gets better soon.
That's all for now.
Sunday, November 18, 2007
New Development Concerning Maddy
First, I know that I said that this blog was to be discontinued, but my goal in first creating this blog was to document Maddy's club feet condition. I feel that one day Maddy would like to look at this and see what see went through. That said the blog will go on.
Maddy started walking well in June this year. About two months later, her dad and I noticed that she was walking a little differently. It was like she had a little limp, first we dismissed it to she must have bumped into something. Then when it did not go away, on Maddy's 18th month visit to her pediatrician, we brought it up. She first asked what ortho had said, I told her that we see ortho next month. It kinda seemed like one of Maddy's legs was a little shorter than the other to me, and I told the doctor this. So she laid Maddy on the exam table, took off her diaper, held her legs together, and looked at her baby creases. At that time all of Maddy's creases were lined up indicating that her legs were the same length. The doctor said to definitely bring it up with ortho because she did not see anything that could be causing a limp, and if there was a problem that is who we would see anyways. So we went for our regular ortho visit in October. Both Kevin (Maddy's Dad) and I went because we thought that there could be something wrong. I guess I was seriously in denial because I keep telling myself that it was a tight tendon or just the way Maddy walked. Well, ortho, saw Maddy walk, felt her hips, and measeured her legs. Then one leg was 1 centimeter longer. Autumn (Maddy's Ortho PA) wanted an x-ray. We go do the x-ray and come back. Autumn pulls it up on the computer, and says there is a problem. I almost immediately start crying. Maddy has hip dysplasia. This basically means that her leg is out of the hip socket on her left side. We are asking what needs to be done to fix it. Autumn calls the doctor, and they believe that Maddy is too old to use a harness to put the femur back in and hold it there. The doctor is in surgery, so we wait to talk to him. We find out that surgery is the best option. The surgery as we are told can be conducted in steps, starting with the least invasive to progressly more invasive.
Maddy had surgery October 12th at Texas Children's Hospital. The surgery went very well, she had a closed reduction, which was the least invasive. The doctor (Dr. Rosenfeld) was able to manually push the femur back into the socket. When this was done one of Maddy's tendons was very tight, so that was cut with a very small stab incision. Maddy is now in a hip spica cast, she has to be in it for 90 days.
Today, she has 53 more days to go in the cast. We go back to ortho to see Dr. Rosenfeld every 2 weeks. We go this Wednesday. At one visit we will get an x-ray and the next visit a CT Scan. The last visit Maddy had a CT scan. The bone looked healthy and in the right place. One of the risks to pushing the top of the bone into the socket death of bone cells in that area. Dr. Rosenfeld is being extra cautious with Maddy because her bone went in the socket very easy so he worried that it will come out easily. The bone can come out of the socket while she is in the cast. If we find that it has come out, the cast will come off and surgery for an open reduction will be scheduled. That is a major surgery, and we really do not want that procedure.
Well, that is Maddy's news. I left our experiences out because I wanted to get to the point, but I will add on in another post-Maddy's reaction, dealing with the cast, how she is doing now, and ways we have adjusted to this.
Maddy's Mom Update
I graduated this my Associate's Degree with an emphasis in Criminal Justice from Tomball College. I am now going to school at Sam Houston State University. The drive is not fun with the rising gas prices (the university is 70 miles from my house).
Maddy's Dad Update
Still working hard to support his family.
Maddy's Brother Update
Doing excellent in school, 3rd grade. Ryan and his dad just built a wood covered wagon for a school project.
Maddy started walking well in June this year. About two months later, her dad and I noticed that she was walking a little differently. It was like she had a little limp, first we dismissed it to she must have bumped into something. Then when it did not go away, on Maddy's 18th month visit to her pediatrician, we brought it up. She first asked what ortho had said, I told her that we see ortho next month. It kinda seemed like one of Maddy's legs was a little shorter than the other to me, and I told the doctor this. So she laid Maddy on the exam table, took off her diaper, held her legs together, and looked at her baby creases. At that time all of Maddy's creases were lined up indicating that her legs were the same length. The doctor said to definitely bring it up with ortho because she did not see anything that could be causing a limp, and if there was a problem that is who we would see anyways. So we went for our regular ortho visit in October. Both Kevin (Maddy's Dad) and I went because we thought that there could be something wrong. I guess I was seriously in denial because I keep telling myself that it was a tight tendon or just the way Maddy walked. Well, ortho, saw Maddy walk, felt her hips, and measeured her legs. Then one leg was 1 centimeter longer. Autumn (Maddy's Ortho PA) wanted an x-ray. We go do the x-ray and come back. Autumn pulls it up on the computer, and says there is a problem. I almost immediately start crying. Maddy has hip dysplasia. This basically means that her leg is out of the hip socket on her left side. We are asking what needs to be done to fix it. Autumn calls the doctor, and they believe that Maddy is too old to use a harness to put the femur back in and hold it there. The doctor is in surgery, so we wait to talk to him. We find out that surgery is the best option. The surgery as we are told can be conducted in steps, starting with the least invasive to progressly more invasive.
Maddy had surgery October 12th at Texas Children's Hospital. The surgery went very well, she had a closed reduction, which was the least invasive. The doctor (Dr. Rosenfeld) was able to manually push the femur back into the socket. When this was done one of Maddy's tendons was very tight, so that was cut with a very small stab incision. Maddy is now in a hip spica cast, she has to be in it for 90 days.
Today, she has 53 more days to go in the cast. We go back to ortho to see Dr. Rosenfeld every 2 weeks. We go this Wednesday. At one visit we will get an x-ray and the next visit a CT Scan. The last visit Maddy had a CT scan. The bone looked healthy and in the right place. One of the risks to pushing the top of the bone into the socket death of bone cells in that area. Dr. Rosenfeld is being extra cautious with Maddy because her bone went in the socket very easy so he worried that it will come out easily. The bone can come out of the socket while she is in the cast. If we find that it has come out, the cast will come off and surgery for an open reduction will be scheduled. That is a major surgery, and we really do not want that procedure.
Well, that is Maddy's news. I left our experiences out because I wanted to get to the point, but I will add on in another post-Maddy's reaction, dealing with the cast, how she is doing now, and ways we have adjusted to this.
Maddy's Mom Update
I graduated this my Associate's Degree with an emphasis in Criminal Justice from Tomball College. I am now going to school at Sam Houston State University. The drive is not fun with the rising gas prices (the university is 70 miles from my house).
Maddy's Dad Update
Still working hard to support his family.
Maddy's Brother Update
Doing excellent in school, 3rd grade. Ryan and his dad just built a wood covered wagon for a school project.
Sunday, May 13, 2007
Anonymous Poster
Maddy has an anonymous poster who is making me a little nervous.
Unless this poster identifies who they are to me, unfortunately this blog will be discontinued.
I understand curiousity, but not when it concerns my children.
Unless this poster identifies who they are to me, unfortunately this blog will be discontinued.
I understand curiousity, but not when it concerns my children.
Monday, April 16, 2007
Maddy's Mom Is A VERY BUSY PERSON!!!!!
There have been some comments about this blog. I apologize if time is wasted for you, checking over and over to see no new updates. To give you some perspective here is my April schedule:
1-My birthday (no joke)
2-College Classes and part-time job
3-2 pm meeting and 6 pm mtg for the college honor society (Phi Theta Kappa) that I am president of
4-Class and Work
5-Work (8 hours)
6-Ryan-No School
9-Class and Budget Hearing for Phi Theta Kappa
10-Flew to Nashville, TN for Phi Theta Kappa Honor Society Convention
15-Arrived home late evening
16-Class and work
17-Evening event for Phi Theta Kappa
18-Class and Work
19-Work and Volunteering at a home for children with troubled families (Boys and Girls Country)
21-Volunteering to clean up area on campus for a Biology outdoor classroom
23-Class and Work
24-Study Skills Presentation for Phi Theta Kappa, 2 pm Meeting, 6 pm Phi Theta Kappa Officer Election Meeting
25-Class and Work
26-Work and Student Excellence Awards (I will be receiving an award)
28-Volunteering for Beach Clean Up
30-Class and Work
In addition to the above activities, I spend time with my family, study for my classes, clean and cook for my family, I try to spend time with my friends, and somewhere in there I like to sleep a little. Please give me a little slack.
Please note that I will not be updating until after Finals (May 7-11) unless Maddy walks and I catch a picture of her doing it.
Maddy is doing great, but still not walking. And that is the Maddy update.
1-My birthday (no joke)
2-College Classes and part-time job
3-2 pm meeting and 6 pm mtg for the college honor society (Phi Theta Kappa) that I am president of
4-Class and Work
5-Work (8 hours)
6-Ryan-No School
9-Class and Budget Hearing for Phi Theta Kappa
10-Flew to Nashville, TN for Phi Theta Kappa Honor Society Convention
15-Arrived home late evening
16-Class and work
17-Evening event for Phi Theta Kappa
18-Class and Work
19-Work and Volunteering at a home for children with troubled families (Boys and Girls Country)
21-Volunteering to clean up area on campus for a Biology outdoor classroom
23-Class and Work
24-Study Skills Presentation for Phi Theta Kappa, 2 pm Meeting, 6 pm Phi Theta Kappa Officer Election Meeting
25-Class and Work
26-Work and Student Excellence Awards (I will be receiving an award)
28-Volunteering for Beach Clean Up
30-Class and Work
In addition to the above activities, I spend time with my family, study for my classes, clean and cook for my family, I try to spend time with my friends, and somewhere in there I like to sleep a little. Please give me a little slack.
Please note that I will not be updating until after Finals (May 7-11) unless Maddy walks and I catch a picture of her doing it.
Maddy is doing great, but still not walking. And that is the Maddy update.
Tuesday, February 06, 2007
General Update
Maddy had her ortho appointment Monda, feet looked good. Our last visit I was worried about how she was holding her feet, but since that visit Maddy has been standing more. I had talked about a possible surgery moving a tendon from one side of the foot to the other side, but no need now. The Ponseti shoes are now available in our area. We do not have a problem with our current shoes, but it would be neat to use the shoes created by the doctor whose technique for correcting club feet is so widely used. Our PA wrote us a prescription for the Ponseti shoes so hopefully our insurance will cover it, and the place we get our shoes can get them. Our appointment for shoes is tomorrow, so we will see.
It has been and will been a busy week.
Monday, Ortho visit. Today, 1 year well (sick) baby check up. Wednesday, Shoes appointment. Thursday, pre-op visit for tubes and adnoids.
At the 1 year check up, Maddy weighs 19.5 pounds and is 28 inches long. If I remember all the percentages correctly they are: Head 10% (which is what she has always been), weight 25% (went up from 15%), and height stayed the same at 15%. Developmentally Maddy is on target, only thing was standing not holding on to anything, but the window for this is 12-15 or 18 months (I have too many numbers in my head). Maddy received 2 immunizations and had a finger poke. She was not happy after this visit. Her current ear infection is not getting better, so switched antibiotics to one that has worked in the past.
Well, I guess that is all for now. I would have put up a picture, but Maddy has a runny nose and that's not so pretty.
It has been and will been a busy week.
Monday, Ortho visit. Today, 1 year well (sick) baby check up. Wednesday, Shoes appointment. Thursday, pre-op visit for tubes and adnoids.
At the 1 year check up, Maddy weighs 19.5 pounds and is 28 inches long. If I remember all the percentages correctly they are: Head 10% (which is what she has always been), weight 25% (went up from 15%), and height stayed the same at 15%. Developmentally Maddy is on target, only thing was standing not holding on to anything, but the window for this is 12-15 or 18 months (I have too many numbers in my head). Maddy received 2 immunizations and had a finger poke. She was not happy after this visit. Her current ear infection is not getting better, so switched antibiotics to one that has worked in the past.
Well, I guess that is all for now. I would have put up a picture, but Maddy has a runny nose and that's not so pretty.
Saturday, February 03, 2007
Today Is Maddy's Birthday!!!
The above picture is the during the party.
And this is Maddy before her party.
What a difference!
More info to come after next week's doctor appointments.
Thursday, January 25, 2007
Another Double Ear Infection
Maddy had her appointment with the ENT doctor. We found out that she has another double ear infection. If you are counting, that is 7 ear infections in 4 months. She is definitely getting tubes put in those ears. We have scheduled the surgery for two weeks from now. She could possibly be getting her adnoids taken off. The doctor will look while she is asleep to see if they are part of the problem. I post more when I have more.
Friday, January 19, 2007
It's Been Soooo Loooong Since I Posted
Everyone is doing well. Madelyn is developmentally on target. Her one year doctor visits (pediatrician and orthopaedic)are the first week of Febuary. We have been dealing with ear infections lately. Maddy has had six ear infections in four months. We just had a rececheck of her ears today which was clear after double ear infections. We have an appointment with an ENT next week. Maddy is cruising around like crazy, but not balancing on her own. I asked our pediatrician today, she said that the window for walking is 10 months to 15 months. Ryan walked at 11 months, so I was hoping that Maddy would walk before her 1st birthday. It doesn't look like it is going to happen.
Maddy just woke from her nap, so must run. I will try to do better in updating. I will definitely update after her appointments.
Subscribe to:
Posts (Atom)